Portal de Totana
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On 18 February, representatives of the board of the Association for Rare Diseases Genes D'Murcia, next to Murcia from ERDF delegate visited the Ciudad Deportiva del Real Madrid in Valdebebas.
At this meeting they met with former player and current CEO of Real Madrid, Miguel totanero Porlán "Chendo" which had the opportunity to personally thank the willingness shown to offer support to people with a rare disease and transmit the project that the association is developing D'genes from its headquarters in Totana but with a radius of action at regional level.
Throughout the interview held, both members of the board of D'Genes as the delegate of ERDF in Murcia showed each and every one of the actions that are developed and explained the different services available to of those affected.
Similarly sent it to "Chendo" intended to have the partnership D'Genes to be sponsored by him, which he accepted and which will result in a public event next June, held a meeting with affected people in Totana and representatives of the two boards.
Also requested that Raul Gonzalez Blanco, who plays for Real Madrid first team, visibility to the Spanish Federation for Rare Diseases and along with Miguel Porlán "Chendo" D'Association Sponsor Genes.
After the interview the board members handed over the "Guide to Support People Diagnosed with Rare Diseases and Charity Calendar to" Chendo. "
The ceremony was also present players Pepe and Marcelo.
Source: D’Genes
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