Portal de Totana

www.portaldetotana.com

End of course voluntary organized by D'genes (26/11/2009)

Has been financed by the Fundación Inocente Inocente and FEDER

The First Year of Volunteers organized by the D'genes has been very successful with the assistance of a total of 26 participants.

The course has been developed on days 8 and 22 October - 5 November 19 in the Multipurpose Room of Citizenship and tried

the following topics:

- Rare diseases in the Region of Murcia.

- The associations are Feder Murcia.

- Different Rare Diseases Registries that exist in Spain.

- Care Research on Rare Diseases in Spain.

- Issues related to volunteering (rights, obligations, confidentiality, tasks).

- Preparation of the monitor to the second meeting of Rare Diseases.

Source: D’genes

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