Portal de Totana
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La Peña Barcelonista of Totana, the Spanish Federation for Rare Diseases-Delegations of Murcia and Catalonia, and the Association for Rare Diseases and Other Disorders of developing Graves' D'Genes Totana, thank FC Barcelona Foundation, and the President of club, Joan Laporta, who on Sunday February 8 has been performed in facilities CAMP NOU An awareness-raising for the group of people who suffer every day of rare diseases, report sources of Totana Barcelonista Peña a statement.
Information booth was installed with the slogan "World Day for Rare Diseases at the door of the Palau Blaugrana in the morning and the gateway to the grandstand of the stadium in the hours before the match FC Barcelona - Sporting Gijon, in which more than 1,000 people expressed support for the "Global Compact for Rare Diseases, the own including Joan Laporta, Alfons Godall, Albert Perrin, Jordi Torrent and Xavier Bagués, the Trustee of the Soci Oranich Magda, the ABV president, Ramon Alfonseda, L'Avi Barça, Dolores Romero, directors of the Social Commission, former officials of the CCP and a large group of club members Catalonia, Castilla-La Mancha, Extremadura and Andalusia, general partners, and, of course, for fans of Sporting Gijon.
In the beginning, during the break, and after the match, a video of this campaign, developed by the Spanish Federation for Rare Diseases (ERDF).
At the end of the day, members of the PB Totana met with the player Andres Iniesta and the father in the office of the PB of Sant Feliu de Llobregat, we appreciate your support here, which could check this great player involvement in acts of solidarity like this.
Hand, it could realize the dream of a Barcelona fan, Juanjo, suffering from a rare disease that took the opportunity to witness the game live at the Camp Nou stadium, and meet in the first person to an exceptional player, as is Andrew Iniesta
From PB Totana want to thank everyone who helped in this event.
The monument of the XXXII World Peñas Trobada FCB begins to take shape in real size
The President of the PB Totana, Juan Carrion, accompanied by executives of the Rock, visit the author's monument Trobada XXXII, Francisco Javier Carrillo Periago, President of the Association of Friends of Bethlehem in the Sale of Los Pinos, to check the progress of the work done so far.
Used the occasion to congratulate the excellent work being done, and the grandeur of this monument.
Already been done to size the Tower of the Church of Santiago de Totana, which is part of the monument, and as you can see is more than 2 meters.
This monument is located in the Parque Municipal de Totana.
Source: PB Totana
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