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The Association for Rare Diseases and Developmental Disorders of Totana "D" GENES "request to the Ministry of Health, Region of Murcia developing a specific plan of care for people diagnosed with these diseases.
To carry out this initiative, Gene D'shall request an appointment with the President of the Autonomous Community, Ramón Luis Valcárcel, and the Minister of Health, María Ángeles Palacios, to convey firsthand the immediate needs of this group and like to announce that starting September the delegation representing Murcia of the Spanish Federation for Rare Diseases, ERDF.
In this regard, and in view of developing this Plan, D'Genes raises the priority need for the implementation of the Comprehensive Care Plan for Rare Diseases "to ensure equity in access to diagnosis, to treatment and care of persons suffering from such diseases. "
Source: D´genes
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