Portal de Totana
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Members of the Board of the Association for Rare Diseases and Developmental Disorders of Totana "D" genes "have held a meeting recently with the CEO of Andalusian Spanish Federation for Rare Diseases, FEDER, Antonio Bañón, to establish lines of cooperation and joint action.
During the meeting, Gene D'informed of all activities of the association during this period since its inception and its early representation in the national federation's Murcia, and established lines of coordination between entities love to work together preparation and organization, among other things, the First National Conference on Rare Diseases, to be held in late October in the town of Totana.
In the course of it, Antonio Bañón explained the operation and projects launched since the Andalusian delegation and agreed to begin procedures to launch in Murcia, a Regional Plan of Care for Rare Diseases.
Source: D´Genes
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