Portal de Totana
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Success VI Solidaire for Rare Diseases has joined Totana Murcia and Almeria Mary.
Around three hundred people participated today in this activity, organized by the Association of Rare Diseases D'Genes, the Association of Families and Affected Lipodystrophies (AELIP) and the Spanish Federation for Rare Diseases (ERDF), and framed within the events commemorative World Rare Disease Day is celebrated on February 28.
The route also had the collaboration of the towns of Totana and Mary, the association Action Quad Totana, Classic Car Association of Totana (AVCT), the Motoclub Wind Totana, Alhama Motoclub Custom, the Custom Totana association Club Scooters Totale, the Club Vespalia Barcelonista Peña Murcia and Totana.
To all of them, both as AELIP D'Genes thank them for their cooperation and participation in an activity that has allowed to give visibility to the reality of low-prevalence diseases.
Cars, motorbikes and quads have taken part in this route, whose participants departed from the square of the Constitution of Totana towards Sierra de Maria.
Upon arrival, participants enjoyed a barbecue lunch.
The route has enjoyed the participation of numerous people, including club and Custom Alhama, Wind, classic cars from Totana, Totana Custom Vespa Totale, Stye USA Charter, Custom Lorca, Murcia Monoturismo, Rebel Moto, Guardian Angels, Vespalia, TT Camper motorhomes, Costa Calida, Motera Platform for Road Safety, Early Action Quad Puerto Lumbreras and Vehicles.
Source: D´Genes
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