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Five murcianas associations are participating in the VII International Congress on Rare Diseases and Orphan Drugs being developed in Seville, organized by the Royal and Illustrious College of Pharmacists of Seville, the Orphan Drugs and Rare Diseases MEHUER Foundation, the Spanish Federation for Rare Diseases (ERDF) and the Foundation for Research ERDF.
The Association for Rare Diseases D'Genes, the Spanish Association of Families and Affected lipodystrophy (AELIP) Ectodermal Dysplasia Association, AVASHELOS and Molinense Association for Rare Diseases (AMER) represent the Region of Murcia in this meeting that being developed on 12, 13 and 14 February in the Andalusian city under the theme "Strengthening efforts: a shared responsibility".
In this context socio together professionals, representatives of the pharmaceutical industry, people with rare diseases and family and representatives of the various administrations are given, to set and clear lines of work that are being developed in Spain and internationally on this matter.
This conference, held biannually, has established in Seville a formation leader in our country where challenges are discussed in tackling rare diseases.
In this edition brought together more than forty associations represented by over sixty people who are part of the social fabric of ERDF and the board.
Source: D´Genes
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