Portal de Totana
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Over two hundred people took part on Sunday February 8 in V Solidaire for Rare Diseases joined Totana Murcia and Almeria Mary.
The route, organized by the Association for Rare Diseases D'Genes, the Association of Relatives and Affected lipodystrophy (AELIP) and the Spanish Federation for Rare Diseases (ERDF), was part of the program of activities organized to mark the World Day Rare Diseases, which falls on February 28
Numerous participants gathered at the square of the Constitution of Totana, from where they left for Sierra de Maria in cars, motorbikes and quads.
The festive atmosphere flooded voluntary activity, in which he also had the cooperation of municipalities of Totana and Mary the Quad Partnership Action Totana, the Association of Classic Vehicles Totana (AVCT), the Motoclub Wind Totana, the motoclub Custom Alhama, Scooters Totale Club, Club Vespalia Murcia, Totana Barcelonista de la Peña, the Association of Classic Car Club of Lorca and Buggy Spain.
Arriving Mary, participants enjoyed a barbecue lunch served to put the finishing touch to an activity that contributed to raising awareness of rare diseases.
D'Genes and AELIP want to thank all persons, organizations and associations that collaborated in organizing this activity and good conduct thereof and the more than two hundred participants.
Source: D´Genes
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