Portal de Totana
www.portaldetotana.com
The V Solidaire for Rare Diseases that run between Totana Murcia and Almeria Mary will be one of the first activities organized under the World Rare Disease Day which falls on February 28.
The route will take place on February 8 and is organized by the Association for Rare Diseases D'Genes, the Association of Relatives and Affected lipodystrophy (AELIP) and the Spanish Federation of Rare Diseases (FEDER).
In addition, with the collaboration of the municipalities in Totana and Mary the association Quad Action Totana, Classic Car Association of Totana (AVCT), the Motoclub Wind Totana, the motoclub Custom Alhama, the Vespa Club Totale, the Club Vespalia Barcelonista Peña Murcia and Totana.
Until January 30 is open enrollment period to participate in this route, which costs 10 euros for adults and 5 euros for children and includes barbecue lunch meal type.
People who want to register can contact D'Genes or AELIP or any of the partners clubs.
The program of the day will start at nine o'clock with inscriptions and distribution of tickets in the Plaza of the Constitution of Totana.
The route will start at ten o'clock from the same location and arrival in Sierra de Maria is expected around 12:30.
Later, at 13:00 hosting a barbecue lunch meal in the Sierra de Maria.
From D'Genes and AELIP want to thank all the organizations and associations that work in organizing this event and thus contribute to raising awareness of the reality of rare diseases.
Source: D´Genes
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