Portal de Totana
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The Mayor of Totana, Isabel Maria Sanchez, closed last Friday, accompanied by Dr. Manuel Moreno, the XXIV Hemophilia Training Conference, held in the Day Centre and Lifelong Learning "The Pond" in Totana, and in which children participated hemophiliacs in Spain.
The event was also attended by the Councillor for Social Care, Josefa Maria Sanchez, president of the Federation of the Disabled Murcianas physical and organic, Carmen Gil, and hematologist Arrixaca Hospital, Faustino Garcia Candel.
Children from almost all regions and aged between 8 and 12 years, were accompanied on the visit by the President of the Association of Hemophilia Murcia, Dr. Manuel Moreno, and by the 25 monitors that handle for their care and attention during this camp.
The XXIV Hemophilia Training Workshops are developed since last July 15 to Saturday July 27.
The purpose of this annual meeting is that children affected by hemophilia can know their condition and self-treatment technique for greater autonomy and less dependence on the family and hospital.
In these days of summer the children are cared for by a multidisciplinary team, mostly volunteers, who include doctors, psychologists and educators, and involving three nurses, two doctors and a physiotherapist Murcia Health Service.
In the region there are 80 patients with hemophilia, rising to 120 if one considers those with other congenital clotting disorders, of which ten are children.
These data are similar to the rest of Spain, where about 3,000 people have this disease: about 85 percent and the rest Hemophilia A Hemophilia B.
All haemophilia Murcia Health Service (SMS) are in prophylaxis and comprehensive treatment with recombinant factor VIII and IX, which makes it possible to dispense with the use of plasma and ensuring greater safety in treatment.
Source: Ayuntamiento de Totana
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