The chairman of the Committee for Health and Social Affairs of the Regional Assembly, Thomas Violante, visited along with the Mayor of Totana, Isabel Maria Sanchez, Health and councilmen, Eulalia Sandoval and Social Care, Maria Josefa Sanchez, the Association Totana Rare Diseases (D'Genes).
During the meeting, the regional head of the Assembly in this area has been known from the national president of the Federation of Rare Diseases (ERDF), Juan Carrion, the lines of action developed by this partnership for improving the quality of life of patients with rare diseases.
The regional manager has expressed his full support for the actions undertaken by the national association and its commitment to develop future joint actions.
Source: Ayuntamiento de Totana