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The Association President Gene D'Murcia, Naca Eulalia Pérez de Tudela, and the delegate of ERDF in Murcia, Juan Carrion, attended the first day of rare diseases held in Spain.
This event allowed for the first time in the Balearic Islands, hold a meeting to bring together professionals of different areas, health, social, suffering from rare diseases and family.
The event took place at the newly opened Hospital Universitario Son Espases in Palma de Mallorca.
D'Genes and FEDER want to congratulate Catherine and Iliana as responsible for ABAIMAR Association (Associació Balearorganizadora the event by the acclaim and the sheer quality developed by all the speakers.
malati rares d'infants amb) Naca presented "Living with a rare disease congenital Berardinelli Lipodystrophy" while the ERDF delegate referred to the importance of associations in rare diseases and D'Genes ERDF and briefly reference to the claims of World Day for Rare Diseases "For equal opportunities for people with rare diseases."
Source: D’Genes
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