Portal de Totana
www.portaldetotana.com
Those interested in participating can still register by calling the telephone number 692 397 840
Next Sunday, February 12, will be held the VII Road Solidarity for Rare Diseases, after it had to be postponed last Sunday due to strong gusts of wind.
The route, organized by the Asociación de Enfermedades Raras D'Genes and the Association of Relatives and Affected Lipodistrofias (AELIP), will run between the municipality of Totana and the Almería of María.
The day also has the collaboration of the Spanish Federation of Rare Diseases (FEDER), the municipalities of Totana and Maria, Quad Action, Classic Vehicles Association Totana, Motoclub Bursts Totana, Totana Custom, Custom Alhama, Club Vespalia Murcia and Peña Barcelonista de Totana.
After the inscriptions, which will be held at nine in the morning, participants will depart at 10:00 am from the Plaza de la Constitución de Totana to the Sierra de María, where the arrival is expected at 12:30 p.m.
There, from 13:00 hours participants can enjoy a barbecue.
The price of the inscription, which includes the barbecue food in the Sierra de María, has been set at 5 euros for children and at 10 euros for adults.
Those interested in participating in this route should contact the collaborating clubs or the organizers.
You can also call 692 397 840.
This activity is part of the program of events organized on the occasion of the World Day of Rare Diseases that commemorates the 28 of February.
From D'Genes and AELIP have encouraged the participation in this new solidarity activity and visibility of the rare pathologies and have wanted to thank all the collaborating entities that make this day possible, especially Peña Barcelonista de Totana and Quad Action , Who have supported and promoted this initiative since its first edition.
They also thanked Pedro Cánovas for the design of the poster
Source: D´Genes
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