Portal de Totana
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The Association of Relatives and Affected Lipodystrophies (AELIP) has organized, with the collaboration of the Association of Rare Diseases D'Genes, the Spanish Federation of Rare Diseases (FEDER) and the Manoli Cánovas Dance School, the activity "Danza Lipodistrofias ", which will take place on Saturdays in February and March, at eleven in the morning.
The sessions will take place at the Manoli Cánovas Dance School in Totana, located at number 1 on Avenida de la Rambla de Totana.
A total of 15 places are available for children with lipodystrophies and other rare diseases.
Those interested can register at the Multidisciplinary Center "Celia Carrión Pérez de Tudela" or by calling the phone 968 07 69 20. The activity will be free for the members of D'Genes and AELIP.
This activity is part of the program of events organized on the occasion of World Rare Disease Day (celebrated on 28 February) and World Lipodistrofias Day (31 March).
Source: AELIP
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