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The Pediatric palliative care project in rare diseases of the Association of Rare Diseases of Genes has been awarded in the II edition of the Premios Somos Pacientes, which recognize the effort, dedication, talent and imagination that the patient associations use to Throughout the year to provide assistance, services and solutions to its partners and society in general.
The Somos Patientes Awards are convened by the Farmaindustria Foundation through the online community of patients and patients with disabilities We Patients.
The prizes were divided into two categories, Society and Patients, so that in this second, in the modality of Best initiative of patient service has been awarded the program Pediatric palliative care in rare diseases of D'Genes, a project carried out in collaboration with the Hospital Clínica Universitario Virgen de la Arrixaca de Murcia and AFACMUR, whose objective is to improve the care and quality of life of pediatric patients with rare diseases and their families in a situation of terminal illness or no response to treatment, in a comprehensive and individualized way, Guaranteeing respect for their dignity and the right to their autonomy.
D'Genes, like the other winners of the category Patients, has been awarded a commemorative trophy and with the amount of 3,000 euros.
The social worker of the association Isabel Sánchez was in charge of collecting the award.
In total, we are Patients received 120 applications to attend this second edition of these awards.
In the category Patients other winners have been Esclerosismultipleenlinea.org of the Gaem Foundation in the modality of better web development or application;
The contest for patients with diabetes Challenge 111 The King of Ones, Inbolo (Best initiative or campaign in the field of social networks);
The Epilepsy Awareness Campaign of the Valencian Community Epilepsy Association (Best initiative for social awareness or promotion of research) or the Awareness Campaign AMIMeToca of the Spanish Association of Leukodystrophies (Initiative preferred by users of We are Patients, elected Through online voting).
For its part, in the category Society has been recognized the book "In love and cancer", Foundation More than Ideas.
The delivery of the II edition of these prizes put the finishing touch to the celebration of the IV Jornada Somos Patientes.
The event was held on Tuesday 13 December in the auditorium of the Architects Association of Madrid, with a capacity of more than 200 people, mostly representing associations of patients and people with disabilities, as well as professional groups, health administrations and Pharmaceutical companies, and under the chairmanship of the Secretary General of Health and Consumer Affairs, Javier Castrodeza.
Source: D´Genes
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