Portal de Totana

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Place de la Vieja Balsa de Totana will host on October 10 a ceremony to mark the European Day FXS (06/10/2016)

The event will take place at 18.00 and will include the reading of a manifesto and a symbolic release of balloons, as well as the realization of a human X.

In addition, smaller may also be made a picture with popular cartoon characters.

This commemorative action is organized by the Association of Rare Diseases D'Genes and the working group D'Genes Fragile X, and with the collaboration of the Spanish Federation for Rare Diseases (ERDF), the Latin American Alliance for Rare Diseases (Aliber) , EURORDIS, the City of Totana, the region and the Barcelonista Peña Totana.

Fragile X syndrome is a rare disease most prevalent in the Region of Murcia, where it is estimated that suffer around 300 people.

Source: D´Genes

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