Portal de Totana
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Over two hundred people have joined steps today by rare diseases in Totana, where this morning was held the IV People's Walk for Rare Diseases organized by the Association of Families and Affected by Lipodystrophies (AELIP) with the collaboration of the Association Rare Diseases D'Genes, the City of Totana and MOVE Sport, Health and Recreation.
This hike was part of the events planned to mark the World Day Lipodystrophies, which was commemorated on 31 March.
Adults and children have taken part in a festive atmosphere on this hike, which departed from the Place de la Vieja Balsa de Totana, to go a total of 8 kilometers.
He has even participated club Cartagena skates, skate Row.
From organizing this walk we want to thank the participation of all people who have taken part in this activity, which allowed give visibility to rare diseases and support individuals and families living with a rare disease, in addition to serving to vindicate the importance of research to provide hope to those affected in the future.
Also, you want to show appreciation also a special way to the collaborating institutions and companies that have contributed to the food supply that has been distributed, Aquadeus, Hero and Preel.
Source: AELIP
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