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Rare Diseases Caravaca pilgrimage to mark the Jubilee Year 2010 (09/03/2010)

This event is organized by the Association for Rare Diseases and Gene D'TGD Murcia Region in collaboration with the Delegation of ERDF in Murcia and Fermin Juan Valverde and collaborators of this event.

For the development of this pilgrimage has also enjoyed the cooperation of the Peña Barcelonista of Totana, business and Bullas Barcelonista Peña which allowed the development of activities such as visits to the Wine Museum and a reception at the headquarters of the rock with wine tasting in the area.

In addition, members of Bullas Barcelonista Peña participated in this pilgrimage led by the chief justice, Alfredo.

The first of two stages in this pilgrimage was divided left of the Baths of Mula on Saturday 6 am, despite the threat of rain, the weather was during this first day.

Total of 21 participants followed the route of 32 km.

that developed in a very cordial and needs to be exchanged is the group of rare diseases affected by people who, for the first time, had direct contact with the Association and D'Genes that could transmit the work it developed to improve the quality of life of this group.

In this regard, include the day of coexistence that developed during a lunch at Mula Child Ermita.

After lunch on this first day, participants had the opportunity to conduct a wine tasting area courtesy of the Rock Barcelonista Bullas.

The second stage began on Sunday morning around 9 and took a group of 35 people the organization, which followed a path of Bullas Caravaca, a distance of 23 km.

The weather accompanied the pilgrims, although it was felt a few drops to the height of Cehegín, who went from a simple anecdote.

After the trip, at about 14.30 pm, the participants moved to the Rock Caballista "Champion" of Caravaca, which hosted the fellowship meal, this food joined the group of people who came by bus from Totana, which had been coordinated by Vincentian Association of Senior Totana.

After lunch, more than a hundred people with the tissue characteristic of the pilgrimage, which is engraved with the logo of the Association D'Genes, arrived at the Church of San Salvador where the parish priest Don Paco took out a blessing, after which the pilgrims performed the last ride to the Basilica de la Vera Cruz de Caravaca, where he celebrated Holy Mass was attended by representatives of the Association.

The day ended about 19.00 h.

pm.

The president of the Association D'Genes, Naca Eulalia Pérez de Tudela, made a very positive assessment of this pilgrimage, as in his words, a space of coexistence possible to exchange the lines of work being carried out by Gene D'Association and also allowed to transmit to people who had first contact with these needs that they too can participate.

Naca also wished to thank most particularly the involvement of John Valverde and his family and Fermin for their assistance in organizing this activity.

Peña also Barcelonista Bullas for their kindness and support companies and Pastry Dulcesol Vigala who put the sweet spot on this pilgrimage to the Rock of Totana Barcelonista who donated the sausages to taste, the company that facilitated Kaixo scarves Vincentian pilgrimage and the Association of Senior Totana.

With all this activity could develop quite normally achieving the same goal, which was none other than raising awareness and visibility to the needs of those affected by rare diseases, following the motto, "A Rare Diseases Social Priority and Health ", and allows greater integration.

Source: D’Genes

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UNE-EN ISO 9001:2000 - ER-0131/2006 Región de Murcia
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