Portal de Totana
www.portaldetotana.com
Families of Andalusia, Madrid, Canary Islands, Galicia, Castilla Leon, Castilla La Mancha, Extremadura, Valencia, Catalonia and Murcia are to give appointment tomorrow at the Seventh National Congress of Rare Diseases will take place until Sunday in Totana.
Under the conference will also take place the First International Symposium Lipodystrophies and VII National Meeting of Families and Affected by a rare disease.
The meeting aims to be a framework for analyzing the latest research and advances but especially also for sharing the reality of daily living people with a rare disease or their relatives.
In fact, Congress will be inaugurated with the testimonial table "Living with a rare disease."
An affected by Rigid Male Syndrome will experience and want encouragement and hope to people who suffer from a rare disease.
In addition, you can also hear the testimony of a father and a mother of two children also affected by a rare disease that will appeal to the search for solutions that contribute to improving the situation for people with a rare disease face.
More information:
http://www.congresoenfermedadesraras.es/
Source: D´Genes
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