Portal de Totana
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The Association for Rare Diseases "D'Genes" Totana along with the Spanish Federation for Rare Diseases, and the hand of the Department of Health, develop next weekend major program activities that have been prepared to commemorate the World Day Rare Diseases February 28.
On Saturday 26 February, the race held in Totana solidarity for rare diseases will start from the Polideportivo Municipal de Totana at 17:00 pm and evening Solidarity Dinner will take place in which awards will Genes in the restaurant D'Pedro Miras.
On Sunday February 27 will be held reading the manifesto of the World Day for Rare Disorders, along with a batucada, mass release of balloons and artistic development of a panel with schools in the region of Murcia on the Square the Constitution of this locality.
At the regional level and by the ERDF on Monday February 28 will be held at the Faculty of Medicine a talk in conjunction with the exhibition "Rare diseases are full of life."
Also, on 3 March will present the Awards of the Spanish Federation in the Senate and Princess Letizia Ortiz will be responsible with the Minister of Health, Leire Pajin, which will honor individuals or organizations that carry out important work with the Association.
Thus, according to Carrión will distinguish the figure of Dr. Murcia, Encarna Guillén, who has led the association since its inception D'Genes.
Source: Ayuntamiento de Totana
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